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PBA: How did you get through all that?
RO: Maybe the key to it is that word you.
Through it all I kept telling myself I
couldn’t let them think of me as some
impersonal patient, the guy who shouldn’t
have had a Klatsin tumor but did. I kept
insisting that they look at me as a person.
PBA: And you started doing chemo.
RO: I know. It sounds like an accomplishment
you’d rather not have. But I did three
cycles of it. Wednesday, Wednesday, off,
Wednesday, Wednesday, off, Wednesday,
Wednesday, catscan. Then back for the
second and third rounds. I lost hair
everywhere except on my face! I still had
to shave every morning! But my appetite
was fine. People would look at me
chowing down and call me a freak.
PBA: Were there other complications?
RO: At one point there was a pulmonary
embolism. If it’s in the book, I’ve had it. My
kidneys were down to 52-55 percent function.
PBA: But that prognosis was also off.
RO: More than that. I kept going back for
medical visits. Then in July 2008, the
surgeon who was supposed to have
operated on me the first time walks into
his office with a big smile. I can’t tell you
how relieved I was to see that because, to
tell the truth, I’d never particularly liked
the guy because he was always gloom and
doom. But now he’s smiling because he
says I’ve progressed enough that he wants
to give the liver operation another try.
PBA: Finally!
RO: (laughs) No, not quite. Because as
soon as my parents leave me in the
hospital room before the operation, the
doctor comes in to say that it’s off because
my blood count is too low. Don’t believe it
when you hear it’s always one step
forward and two back with these things.
The truth is, it’s usually one step forward
and five back.
PBA: They built your count up again.
RO: Right. Then they did the operation —
11 hours worth! They found the first
spread of the cancer to my lymph nodes
and pancreas, but it was early enough to
stop. When they finished, I’d lost 30
percent of my liver. |
PBA: And since then?
RO: Since then I go in for a catscan every three months, then sit around in a doctor’s office trembling about what the test says.
PBA: Have you ever had any doubt that
these problems were caused by
exposure to Ground Zero?
RO: How could I? There was no cancer in
my family going back at least three
generations. Even the relatively minor
ailments I’ve had along the way were for
the first time in my family. Then there
were the conditions while we were down
there guarding. I mean, if the guy doing
the power wash has to be dressed up like
he’s invading a nuclear plant melting down,
what does that say about the safety of other
people in the area? That’s why it’s really
time to stop haggling and get the Zadroga
bill passed, but with some very specific
references to cancer added, of course.
PBA: In those rare moments when you
can step back from this horrid series of
ailments, what goes through your head?
RO: First, you have the two types of people
I’ve come across with problems like mine
— those who are fighting to live and those
who are fighting to die. I include those
who insist they’re fighting to live but keep
giving themselves deadlines, like, “If I can
only make it through to Christmas!” That
to me is the same thing as saying they’re
fighting to die on December 26. I can’t
hear that kind of thing. Anybody who
thinks like that is going to end up taking
his feelings out on others and that’s not
going to be pleasant to be around.
PBA: You must have moments of terror.
RO: Of course. What I have to keep
reminding myself is that I’m a cancer
fighter, not a cancer survivor. Whenever
somebody refers to me as a cancer
survivor, I really have to correct them.
Nobody survives cancer. It’s going to get
you directly or indirectly one way or
another. But you can go on fighting it and
all the baggage it brings with it.
A week after sitting for this
inter view, Robert Oswain was
married at City Hall.
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9/11 Cancer Link
Confirmed?
The World Trade Center steering
committee will recommend at their
December meeting to have multiple
myeloma, leukemia and possibly other
cancers recognized as 9/11-related and
eligible for treatment under the
federally-funded program at Mt. Sinai
Hospital. In establishing a presumptive
link between these cancers and work
by first responders at the WTC sites,
the steering committee provides
another strong reason for amending
the Zadroga bill currently before
Congress to include cancers and
furnish the quality, cost-free treatment
our afflicted members deserve.
If the National Institute of Occupational
Safety and Health (NIOSH)
accepts the steering committee’s
recommendations, the Zadroga bill —
which doesn’t provide treatment for
any cancers — will be outdated.
An August 2009 steering
committee report on multiple myeloma
diagnosed eight confirmed cases of the
disease, four of them in responders
younger than 45 and occurring at a
higher rate than in the general
population. Since then, the committee
has confirmed eight other cases. Under
optimum circumstances, treatment for
these responders will not be available
until next year. This is too long for
them to wait. We must get treatment to
our “forgotten heroes” as soon as
possible, when it can be most effective.
The Zadroga bill must be amended
to include cancers.
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